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Empowering Young People with Rare Diseases: Take Charge of Your Health
22q - Rare Disease Guide for parents
RDD Webinar: Driving Awareness by amplifying Young voices in the Rare Disease community
Impact of rare diseases on mental health and wellbeing
Governments Spur Rare Disease Treatments - Part 2
10 Tips for Newly Diagnosed Rare Disease Patients and Families
Healthcare Decision Making for Young Adults with Rare Diseases – Resource Guide
Make it or Break it: Communication in Rare Diseases | Rare Disease Day Webinar
The Truth About Obesity Myths That are Destroying Your Health | Dr Gabrielle Lyon
Rare Disease Week 2021: Young Adult Advocacy Session
Once Upon A Gene - Utilizing Child Life Specialists - Empowering Rare Disease and Medically...
Teens with Rare Diseases: Helping Them Transition to Adulthood